National Thalassemia Welfare Society observed its 25th Foundation Day on Sunday, 22nd Nov 2015 at 8 Dr BD Marg, New Delhi 110001 at the residence of Sh. Hansraj Ahir, (Hon’ble Union Minister of Chemicals & Fertilizers). The function started in the evening by 5:00 pm to 9:00 pm. Around 250 thalassemia patients gathered to showcase their talent and raise their voice for better management & prevention of Thalassemia disease.
Dr. Soumya Swaminathan, Director General ICMR inaugurated the function by lighting the lamp. Unfortunately Sh Hansraj Ahir Ji did not make to the event due to some other commitments. Dr. Soumya Swaminathan was really happy to grace the occasion and she committed that she will work on the prevention of Thalassemia. She said that she would love to associate with National Thalassemia Welfare Society for the care and control of Thalassemia.
Km Surrendar Saini (President, NTWS), Padma Bhushan Awardee and one of the biggest role model of our country emphasized on the journey of NTWS.
While addressing the audience Dr. JS Arora (General Secretary NTWS) highlighted the achievements of society of last 24 years, the hurdles overcome, and the future goals.
Dr. VP Choudhry (Medical Advisor, NTWS) impart all about his remarkable association with National Thalassemia Welfare Society from past 24 years. Dr. Choudhry expressed gratitude to our President Km. Surrendar Saini for her honorable contribution towards the society.
After that a very little angel Arushi Mishra (Thalassemia Major) performed Kathak Dance which was highly appreciated by all. Her dances made the audience enjoy the lovely evening ambience sitting in the open.
Ms. Jyoti Arora a Thalassemia Major patient and author of two novels ‘ Dreams Sake’ & ‘Lemom Girl’ showed her concern that inspite of best possible treatment Thalassemia patients are unable to compete with their peers on one hand and on other hand even if they are eligible by competition & deserve their due they are refused jobs on one pretext or the other. If they are covered under disability Act then they will be in a position to achieve desired level of competence will be able to livelihood without support of their parents or after parents (expired).
Another performance by a very young boy Sarthak Chabra (Thalassemia Major) sang a song alongwith his guitar. His performance completely changed the aura of whole evening to a very soothing note.
And then all the dignitaries felicitated the performers of the day & 3 Lucky Draws were released out of all the 50 coupons.
The last item and much awaited attraction of the day, DJ got started for all the thalassemics. Each and every Thalassemic patient and parents shake their boots on the dance floor with full zeal which added the cherry on the cake of the Foundation Day evening.
After that scrumptious dinner was served for all and then the event got ended with mouth relishing sweets combination of Gulab Jamun and Ice Cream and a wonderful memorable return Gift for all.